Christy and Tom Holton (Parents of Harlie)
Christy and Tom Holton advocate for families of medically complex children through their work with We Heart Harlie and Friends, a nonprofit supporting children with complicated medical needs and their families. Christy balances caregiving for her daughter Harlie — who lives with heart and lung disease, VACTERAL Association, and Goldenhar Syndrome — with part‑time work and family life. Tom stands alongside her in efforts to connect families with resources, raise awareness, and build community support. In their free time, they enjoy family activities and outdoor pursuits together.
Christy and Tom Holton advocate for families of medically complex children through their work with We Heart Harlie and Friends, a nonprofit supporting children with complicated medical needs and their families. Christy balances caregiving for her daughter Harlie — who lives with heart and lung disease, VACTERAL Association, and Goldenhar Syndrome — with part‑time work and family life. Tom stands alongside her in efforts to connect families with resources, raise awareness, and build community support. In their free time, they enjoy family activities and outdoor pursuits together.
Allison and Bryce Lefebvre (Parents of Miles and Caleb)
Allison and Bryce Lefebvre co‑lead Something So Worth It, a nonprofit dedicated to supporting children with medically fragile conditions and their families. Allison brings experience from the nonprofit and event planning worlds and founded the organization out of her own journey as a parent of medically complex children, serving as its president and active community advocate. Bryce, a finance professional, supports the mission through his work and shared commitment to expanding resources for families like his sons’. Together they connect families to support, research, and community networks while advocating for healthcare rights and inclusion.
Allison and Bryce Lefebvre co‑lead Something So Worth It, a nonprofit dedicated to supporting children with medically fragile conditions and their families. Allison brings experience from the nonprofit and event planning worlds and founded the organization out of her own journey as a parent of medically complex children, serving as its president and active community advocate. Bryce, a finance professional, supports the mission through his work and shared commitment to expanding resources for families like his sons’. Together they connect families to support, research, and community networks while advocating for healthcare rights and inclusion.
Erin and Mark Ward (Parents of Will)
Erin and Mark Ward work to improve patient-professional partnerships across clinical care and therapeutic development for children with complex medical needs. Erin holds a master’s degree in Education and a Certificate of Advanced Study in Counseling, and has served as Associate Faculty at Boston Children’s Hospital and Harvard Medical School. Together, they co-founded MTM-CNM Family Connection, a nonprofit supporting families affected by Myotubular and Centronuclear Myopathy, inspired by their late son, Will. Their advocacy continues to honor his life.
Erin and Mark Ward work to improve patient-professional partnerships across clinical care and therapeutic development for children with complex medical needs. Erin holds a master’s degree in Education and a Certificate of Advanced Study in Counseling, and has served as Associate Faculty at Boston Children’s Hospital and Harvard Medical School. Together, they co-founded MTM-CNM Family Connection, a nonprofit supporting families affected by Myotubular and Centronuclear Myopathy, inspired by their late son, Will. Their advocacy continues to honor his life.
Jay G. Berry, MD, MPH - Boston Children’s Hospital (Boston, MA)
Dr. Berry is chief of complex care services at Boston Children’s Hospital and an associate professor of pediatrics at Harvard Medical School. He is a general pediatrician and hospitalist whose research focuses on improving care delivery, outcomes, and resource use for children with medical complexity. He earned his MD from the University of Alabama School of Medicine and an MPH from the Harvard School of Public Health. His work has been published in leading journals including JAMA, BMJ, and PLOS Medicine, and he has received national recognition for his contributions to pediatric health services research.
Dr. Berry is chief of complex care services at Boston Children’s Hospital and an associate professor of pediatrics at Harvard Medical School. He is a general pediatrician and hospitalist whose research focuses on improving care delivery, outcomes, and resource use for children with medical complexity. He earned his MD from the University of Alabama School of Medicine and an MPH from the Harvard School of Public Health. His work has been published in leading journals including JAMA, BMJ, and PLOS Medicine, and he has received national recognition for his contributions to pediatric health services research.
Z. Leah Harris MD - Dell Children’s Medical Center (Austin, TX)
Dr. Harris is professor and chair of the Department of Pediatrics and director of the Dell Pediatric Research Institute at Dell Medical School. She also serves as interim president and physician-in-chief at Dell Children’s Medical Center of Central Texas. She earned her MD from Rosalind Franklin University of Medicine and Science and completed her pediatric critical care residency and fellowship at the University of Chicago Hospitals. She has held leadership roles at Lurie Children’s Hospital, Northwestern University, Washington University in St. Louis, Johns Hopkins University, and Vanderbilt University, focusing on pediatric critical care, academic affairs, and hospital-based medicine.
Dr. Harris is professor and chair of the Department of Pediatrics and director of the Dell Pediatric Research Institute at Dell Medical School. She also serves as interim president and physician-in-chief at Dell Children’s Medical Center of Central Texas. She earned her MD from Rosalind Franklin University of Medicine and Science and completed her pediatric critical care residency and fellowship at the University of Chicago Hospitals. She has held leadership roles at Lurie Children’s Hospital, Northwestern University, Washington University in St. Louis, Johns Hopkins University, and Vanderbilt University, focusing on pediatric critical care, academic affairs, and hospital-based medicine.
Elisha D. Waldman MD - Great Ormond Street Hospital for Children (London, UK)
Elisha Waldman, MD, was raised in Connecticut. After earning a BA in Religious Studies at Yale University he received his MD in Tel Aviv followed by training in pediatrics at Mount Sinai Medical Center and Pediatric Hematology-Oncology at Memorial Sloan Kettering Cancer Center in New York. After several years practicing pediatric oncology at Hadassah Hospital in Jerusalem (which led to his nonfiction book, This Narrow Space, about his experiences working in the Middle East and what it meant to work as a liberal Jew in a culturally and politically complex environment with patients of many different faiths), Dr. Waldman returned to the U.S. to train in Pediatric Hospice and Palliative Medicine at Children’s Hospital Boston. He has since worked in pediatric palliative care in Jerusalem, at Columbia University Medical Center in New York, and at Lurie Children’s Hospital of Chicago. He is currently a consultant in palliative care at Great Ormond Street Hospital in London. His major interests include spirituality and suffering in the context of pediatric palliative care, as well as the potential role of psychedelic therapies in addressing suffering. Dr. Waldman is active in the American Academy of Hospice and Palliative Medicine, where he has served in a number of leadership capacities, including a term on the Board as Director at Large. He has published widely in the medical literature as well as in national media outlets, and he is the associate editor for pediatric content at the Journal of Pain and Symptom Management. His writing has appeared in the New York Times, the Washington Post, Time, the Hill, and elsewhere.
Elisha Waldman, MD, was raised in Connecticut. After earning a BA in Religious Studies at Yale University he received his MD in Tel Aviv followed by training in pediatrics at Mount Sinai Medical Center and Pediatric Hematology-Oncology at Memorial Sloan Kettering Cancer Center in New York. After several years practicing pediatric oncology at Hadassah Hospital in Jerusalem (which led to his nonfiction book, This Narrow Space, about his experiences working in the Middle East and what it meant to work as a liberal Jew in a culturally and politically complex environment with patients of many different faiths), Dr. Waldman returned to the U.S. to train in Pediatric Hospice and Palliative Medicine at Children’s Hospital Boston. He has since worked in pediatric palliative care in Jerusalem, at Columbia University Medical Center in New York, and at Lurie Children’s Hospital of Chicago. He is currently a consultant in palliative care at Great Ormond Street Hospital in London. His major interests include spirituality and suffering in the context of pediatric palliative care, as well as the potential role of psychedelic therapies in addressing suffering. Dr. Waldman is active in the American Academy of Hospice and Palliative Medicine, where he has served in a number of leadership capacities, including a term on the Board as Director at Large. He has published widely in the medical literature as well as in national media outlets, and he is the associate editor for pediatric content at the Journal of Pain and Symptom Management. His writing has appeared in the New York Times, the Washington Post, Time, the Hill, and elsewhere.
Christy and Tom Holton (Parents of Harlie)
Christy and Tom Holton advocate for families of medically complex children through their work with We Heart Harlie and Friends, a nonprofit supporting children with complicated medical needs and their families. Christy balances caregiving for her daughter Harlie — who lives with heart and lung disease, VACTERAL Association, and Goldenhar Syndrome — with part‑time work and family life. Tom stands alongside her in efforts to connect families with resources, raise awareness, and build community support. In their free time, they enjoy family activities and outdoor pursuits together.
Christy and Tom Holton advocate for families of medically complex children through their work with We Heart Harlie and Friends, a nonprofit supporting children with complicated medical needs and their families. Christy balances caregiving for her daughter Harlie — who lives with heart and lung disease, VACTERAL Association, and Goldenhar Syndrome — with part‑time work and family life. Tom stands alongside her in efforts to connect families with resources, raise awareness, and build community support. In their free time, they enjoy family activities and outdoor pursuits together.
Allison and Bryce Lefebvre (Parents of Miles and Caleb)
Allison and Bryce Lefebvre co‑lead Something So Worth It, a nonprofit dedicated to supporting children with medically fragile conditions and their families. Allison brings experience from the nonprofit and event planning worlds and founded the organization out of her own journey as a parent of medically complex children, serving as its president and active community advocate. Bryce, a finance professional, supports the mission through his work and shared commitment to expanding resources for families like his sons’. Together they connect families to support, research, and community networks while advocating for healthcare rights and inclusion.
Allison and Bryce Lefebvre co‑lead Something So Worth It, a nonprofit dedicated to supporting children with medically fragile conditions and their families. Allison brings experience from the nonprofit and event planning worlds and founded the organization out of her own journey as a parent of medically complex children, serving as its president and active community advocate. Bryce, a finance professional, supports the mission through his work and shared commitment to expanding resources for families like his sons’. Together they connect families to support, research, and community networks while advocating for healthcare rights and inclusion.
Erin and Mark Ward (Parents of Will)
Erin and Mark Ward work to improve patient-professional partnerships across clinical care and therapeutic development for children with complex medical needs. Erin holds a master’s degree in Education and a Certificate of Advanced Study in Counseling, and has served as Associate Faculty at Boston Children’s Hospital and Harvard Medical School. Together, they co-founded MTM-CNM Family Connection, a nonprofit supporting families affected by Myotubular and Centronuclear Myopathy, inspired by their late son, Will. Their advocacy continues to honor his life.
Erin and Mark Ward work to improve patient-professional partnerships across clinical care and therapeutic development for children with complex medical needs. Erin holds a master’s degree in Education and a Certificate of Advanced Study in Counseling, and has served as Associate Faculty at Boston Children’s Hospital and Harvard Medical School. Together, they co-founded MTM-CNM Family Connection, a nonprofit supporting families affected by Myotubular and Centronuclear Myopathy, inspired by their late son, Will. Their advocacy continues to honor his life.
Jay G. Berry, MD, MPH - Boston Children’s Hospital (Boston, MA)
Dr. Berry is chief of complex care services at Boston Children’s Hospital and an associate professor of pediatrics at Harvard Medical School. He is a general pediatrician and hospitalist whose research focuses on improving care delivery, outcomes, and resource use for children with medical complexity. He earned his MD from the University of Alabama School of Medicine and an MPH from the Harvard School of Public Health. His work has been published in leading journals including JAMA, BMJ, and PLOS Medicine, and he has received national recognition for his contributions to pediatric health services research.
Dr. Berry is chief of complex care services at Boston Children’s Hospital and an associate professor of pediatrics at Harvard Medical School. He is a general pediatrician and hospitalist whose research focuses on improving care delivery, outcomes, and resource use for children with medical complexity. He earned his MD from the University of Alabama School of Medicine and an MPH from the Harvard School of Public Health. His work has been published in leading journals including JAMA, BMJ, and PLOS Medicine, and he has received national recognition for his contributions to pediatric health services research.
Z. Leah Harris MD - Dell Children’s Medical Center (Austin, TX)
Dr. Harris is professor and chair of the Department of Pediatrics and director of the Dell Pediatric Research Institute at Dell Medical School. She also serves as interim president and physician-in-chief at Dell Children’s Medical Center of Central Texas. She earned her MD from Rosalind Franklin University of Medicine and Science and completed her pediatric critical care residency and fellowship at the University of Chicago Hospitals. She has held leadership roles at Lurie Children’s Hospital, Northwestern University, Washington University in St. Louis, Johns Hopkins University, and Vanderbilt University, focusing on pediatric critical care, academic affairs, and hospital-based medicine.
Dr. Harris is professor and chair of the Department of Pediatrics and director of the Dell Pediatric Research Institute at Dell Medical School. She also serves as interim president and physician-in-chief at Dell Children’s Medical Center of Central Texas. She earned her MD from Rosalind Franklin University of Medicine and Science and completed her pediatric critical care residency and fellowship at the University of Chicago Hospitals. She has held leadership roles at Lurie Children’s Hospital, Northwestern University, Washington University in St. Louis, Johns Hopkins University, and Vanderbilt University, focusing on pediatric critical care, academic affairs, and hospital-based medicine.
Elisha D. Waldman MD - Great Ormond Street Hospital for Children (London, UK)
Elisha Waldman, MD, was raised in Connecticut. After earning a BA in Religious Studies at Yale University he received his MD in Tel Aviv followed by training in pediatrics at Mount Sinai Medical Center and Pediatric Hematology-Oncology at Memorial Sloan Kettering Cancer Center in New York. After several years practicing pediatric oncology at Hadassah Hospital in Jerusalem (which led to his nonfiction book, This Narrow Space, about his experiences working in the Middle East and what it meant to work as a liberal Jew in a culturally and politically complex environment with patients of many different faiths), Dr. Waldman returned to the U.S. to train in Pediatric Hospice and Palliative Medicine at Children’s Hospital Boston. He has since worked in pediatric palliative care in Jerusalem, at Columbia University Medical Center in New York, and at Lurie Children’s Hospital of Chicago. He is currently a consultant in palliative care at Great Ormond Street Hospital in London. His major interests include spirituality and suffering in the context of pediatric palliative care, as well as the potential role of psychedelic therapies in addressing suffering. Dr. Waldman is active in the American Academy of Hospice and Palliative Medicine, where he has served in a number of leadership capacities, including a term on the Board as Director at Large. He has published widely in the medical literature as well as in national media outlets, and he is the associate editor for pediatric content at the Journal of Pain and Symptom Management. His writing has appeared in the New York Times, the Washington Post, Time, the Hill, and elsewhere.
Elisha Waldman, MD, was raised in Connecticut. After earning a BA in Religious Studies at Yale University he received his MD in Tel Aviv followed by training in pediatrics at Mount Sinai Medical Center and Pediatric Hematology-Oncology at Memorial Sloan Kettering Cancer Center in New York. After several years practicing pediatric oncology at Hadassah Hospital in Jerusalem (which led to his nonfiction book, This Narrow Space, about his experiences working in the Middle East and what it meant to work as a liberal Jew in a culturally and politically complex environment with patients of many different faiths), Dr. Waldman returned to the U.S. to train in Pediatric Hospice and Palliative Medicine at Children’s Hospital Boston. He has since worked in pediatric palliative care in Jerusalem, at Columbia University Medical Center in New York, and at Lurie Children’s Hospital of Chicago. He is currently a consultant in palliative care at Great Ormond Street Hospital in London. His major interests include spirituality and suffering in the context of pediatric palliative care, as well as the potential role of psychedelic therapies in addressing suffering. Dr. Waldman is active in the American Academy of Hospice and Palliative Medicine, where he has served in a number of leadership capacities, including a term on the Board as Director at Large. He has published widely in the medical literature as well as in national media outlets, and he is the associate editor for pediatric content at the Journal of Pain and Symptom Management. His writing has appeared in the New York Times, the Washington Post, Time, the Hill, and elsewhere.