Adam Larsen (Director, Cinematographer, Editor)
Adam Larsen is an artist, filmmaker, and projection designer based in Asheville, NC. His diverse body of work spans documentary filmmaking, immersive projection installations, and live performance design. Adam’s directorial debut, Neurotypical, premiered on PBS's POV and has received widespread acclaim. His second documentary, Undersung, chronicles the challenges and resilience of caregivers for severely disabled family members. In addition to his work in film, Adam has designed video projections for nearly 200 productions both On and Off-Broadway, as well as international performances. His projection art includes immersive installations like A Worm's Eye View, a 360-degree experience created specifically for autistic audiences, which premiered at the Common Senses Autism Festival and was later presented at the David Brower Center in Berkeley and Nebraska Flatwater, a 10-projector meditation on the Nebraska landscape. Adam is currently developing The Pinecone, a mobile 360-degree projection venue that brings immersive natural landscapes to audiences with disabilities.
Adam Larsen is an artist, filmmaker, and projection designer based in Asheville, NC. His diverse body of work spans documentary filmmaking, immersive projection installations, and live performance design. Adam’s directorial debut, Neurotypical, premiered on PBS's POV and has received widespread acclaim. His second documentary, Undersung, chronicles the challenges and resilience of caregivers for severely disabled family members. In addition to his work in film, Adam has designed video projections for nearly 200 productions both On and Off-Broadway, as well as international performances. His projection art includes immersive installations like A Worm's Eye View, a 360-degree experience created specifically for autistic audiences, which premiered at the Common Senses Autism Festival and was later presented at the David Brower Center in Berkeley and Nebraska Flatwater, a 10-projector meditation on the Nebraska landscape. Adam is currently developing The Pinecone, a mobile 360-degree projection venue that brings immersive natural landscapes to audiences with disabilities.
Ann F. Schrooten (Executive Producer)
Ann is the mother of four children. Her third child, Jack, was born with a rare congenital muscular dystrophy. Jack had a trach and required the support of a ventilator; he was non-verbal, non-mobile and required around the clock care. Jack died in 2014 at the age of 15 from complications of his disease. Ann has experienced hundreds of encounters with doctors and other medical professionals, beginning with Jack’s premature birth and complicated first year where he spent many months in the Pediatric Intensive Care Unit, through his diagnosis odyssey, the many procedures, surgeries and hospitalizations he endured, his transition to palliative care and, finally, to hospice care at the end of his life.
Ann co-authored the book, Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses with Dr. Barry Markovitz; she co-authored "Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death” in Neuromuscular Disorders in Children: A Multidisciplinary Approach to Management; she was a parent advisor for the development of videos portraying family experiences with decisions about home mechanical ventilation; and in November 2023, she took to the stage in New York City for a live storytelling event centered on the theme of "Taking Care" hosted by The Nocturnist and Bellevue Literary Review.
Ann has a Bachelor of Science from Arizona State University and a Juris Doctorate from University of Arizona. She is an estate planning and probate attorney. She is the founder of The Willow Tree Foundation, an Arizona non-profit organization that funds respite for parents of medically fragile children. Ann lives in Chandler, Arizona with her husband and their three adult children.
Ann’s writings:
www.jack-schrooten.blogspot.com
www.inchingonward.blogspot.com
Ann is the mother of four children. Her third child, Jack, was born with a rare congenital muscular dystrophy. Jack had a trach and required the support of a ventilator; he was non-verbal, non-mobile and required around the clock care. Jack died in 2014 at the age of 15 from complications of his disease. Ann has experienced hundreds of encounters with doctors and other medical professionals, beginning with Jack’s premature birth and complicated first year where he spent many months in the Pediatric Intensive Care Unit, through his diagnosis odyssey, the many procedures, surgeries and hospitalizations he endured, his transition to palliative care and, finally, to hospice care at the end of his life.
Ann co-authored the book, Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses with Dr. Barry Markovitz; she co-authored "Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death” in Neuromuscular Disorders in Children: A Multidisciplinary Approach to Management; she was a parent advisor for the development of videos portraying family experiences with decisions about home mechanical ventilation; and in November 2023, she took to the stage in New York City for a live storytelling event centered on the theme of "Taking Care" hosted by The Nocturnist and Bellevue Literary Review.
Ann has a Bachelor of Science from Arizona State University and a Juris Doctorate from University of Arizona. She is an estate planning and probate attorney. She is the founder of The Willow Tree Foundation, an Arizona non-profit organization that funds respite for parents of medically fragile children. Ann lives in Chandler, Arizona with her husband and their three adult children.
Ann’s writings:
www.jack-schrooten.blogspot.com
www.inchingonward.blogspot.com
Barry P. Markovitz MD MPH (Advisor)
Dr. Markovitz joined the University of Utah School of Medicine and Intermountain Primary Children’s Hospital as Professor of Pediatrics and Associate Division Chief for Research in the Division of Pediatric Critical Care Medicine on September 1, 2023.
In 2006, Dr. Markovitz joined Children’s Hospital Los Angeles to head the hospital’s Division of Critical Care Medicine and serve as Medical Director of the Pediatric Intensive Care Unit. He served as Chair of the Department of Anesthesiology Critical Care Medicine from 2018 to 2022. He was also a professor of Clinical Pediatrics and Anesthesiology at the Keck School of Medicine of USC. Dr. Markovitz is Board-certified in anesthesiology and pediatric anesthesiology, as well as pediatrics and pediatric critical care medicine. He has been involved in numerous research studies related to intensive care throughout his career, including transfusions, relationships between Pediatric ICU volume and outcomes, and the treatment of sepsis and acute respiratory distress syndrome.
Dr. Markovitz has served on the Executive Committee of the critical care section of the American Academy of Pediatrics. He has served on several editorial boards and was Chair of the Research Committee of VPS, LLC (Virtual Pediatric Systems), an international pediatric ICU quality and research collaborative. He also recently completed a term as Chair of the Scientific Committee of PALISI (Pediatric Acute Lung Injury and Sepsis Investigators), the largest pediatric critical care research network in North America. He developed and has maintained PedsCCM.org, the website for pediatric critical care, since 1995.
He earned his medical degree from the University of Pennsylvania Perelman School of Medicine and received a master’s in public health from St. Louis University. He did his pediatric internship and residency at Children’s Memorial Hospital (now the Ann & Robert H. Lurie Children’s Hospital of Chicago), Northwestern University Medical Center, and an anesthesiology residency at the Hospital of the University of Pennsylvania. Dr. Markovitz completed his fellowship in pediatric anesthesiology and critical care medicine at Children’s Hospital of Philadelphia.
He is a co-editor, with Ann Schrooten, of a collection of stories and commentaries by pediatricians and parents of children with medical complexity; Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses (Springer, 2021).
Dr. Markovitz joined the University of Utah School of Medicine and Intermountain Primary Children’s Hospital as Professor of Pediatrics and Associate Division Chief for Research in the Division of Pediatric Critical Care Medicine on September 1, 2023.
In 2006, Dr. Markovitz joined Children’s Hospital Los Angeles to head the hospital’s Division of Critical Care Medicine and serve as Medical Director of the Pediatric Intensive Care Unit. He served as Chair of the Department of Anesthesiology Critical Care Medicine from 2018 to 2022. He was also a professor of Clinical Pediatrics and Anesthesiology at the Keck School of Medicine of USC. Dr. Markovitz is Board-certified in anesthesiology and pediatric anesthesiology, as well as pediatrics and pediatric critical care medicine. He has been involved in numerous research studies related to intensive care throughout his career, including transfusions, relationships between Pediatric ICU volume and outcomes, and the treatment of sepsis and acute respiratory distress syndrome.
Dr. Markovitz has served on the Executive Committee of the critical care section of the American Academy of Pediatrics. He has served on several editorial boards and was Chair of the Research Committee of VPS, LLC (Virtual Pediatric Systems), an international pediatric ICU quality and research collaborative. He also recently completed a term as Chair of the Scientific Committee of PALISI (Pediatric Acute Lung Injury and Sepsis Investigators), the largest pediatric critical care research network in North America. He developed and has maintained PedsCCM.org, the website for pediatric critical care, since 1995.
He earned his medical degree from the University of Pennsylvania Perelman School of Medicine and received a master’s in public health from St. Louis University. He did his pediatric internship and residency at Children’s Memorial Hospital (now the Ann & Robert H. Lurie Children’s Hospital of Chicago), Northwestern University Medical Center, and an anesthesiology residency at the Hospital of the University of Pennsylvania. Dr. Markovitz completed his fellowship in pediatric anesthesiology and critical care medicine at Children’s Hospital of Philadelphia.
He is a co-editor, with Ann Schrooten, of a collection of stories and commentaries by pediatricians and parents of children with medical complexity; Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses (Springer, 2021).
Adam Larsen (Director, Cinematographer, Editor)
Adam Larsen is an artist, filmmaker, and projection designer based in Asheville, NC. His diverse body of work spans documentary filmmaking, immersive projection installations, and live performance design. Adam’s directorial debut, Neurotypical, premiered on PBS's POV and has received widespread acclaim. His second documentary, Undersung, chronicles the challenges and resilience of caregivers for severely disabled family members. In addition to his work in film, Adam has designed video projections for nearly 200 productions both On and Off-Broadway, as well as international performances. His projection art includes immersive installations like A Worm's Eye View, a 360-degree experience created specifically for autistic audiences, which premiered at the Common Senses Autism Festival and was later presented at the David Brower Center in Berkeley and Nebraska Flatwater, a 10-projector meditation on the Nebraska landscape. Adam is currently developing The Pinecone, a mobile 360-degree projection venue that brings immersive natural landscapes to audiences with disabilities.
Adam Larsen is an artist, filmmaker, and projection designer based in Asheville, NC. His diverse body of work spans documentary filmmaking, immersive projection installations, and live performance design. Adam’s directorial debut, Neurotypical, premiered on PBS's POV and has received widespread acclaim. His second documentary, Undersung, chronicles the challenges and resilience of caregivers for severely disabled family members. In addition to his work in film, Adam has designed video projections for nearly 200 productions both On and Off-Broadway, as well as international performances. His projection art includes immersive installations like A Worm's Eye View, a 360-degree experience created specifically for autistic audiences, which premiered at the Common Senses Autism Festival and was later presented at the David Brower Center in Berkeley and Nebraska Flatwater, a 10-projector meditation on the Nebraska landscape. Adam is currently developing The Pinecone, a mobile 360-degree projection venue that brings immersive natural landscapes to audiences with disabilities.
Ann F. Schrooten (Executive Producer)
Ann is the mother of four children. Her third child, Jack, was born with a rare congenital muscular dystrophy. Jack had a trach and required the support of a ventilator; he was non-verbal, non-mobile and required around the clock care. Jack died in 2014 at the age of 15 from complications of his disease. Ann has experienced hundreds of encounters with doctors and other medical professionals, beginning with Jack’s premature birth and complicated first year where he spent many months in the Pediatric Intensive Care Unit, through his diagnosis odyssey, the many procedures, surgeries and hospitalizations he endured, his transition to palliative care and, finally, to hospice care at the end of his life.
Ann co-authored the book, Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses with Dr. Barry Markovitz; she co-authored "Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death” in Neuromuscular Disorders in Children: A Multidisciplinary Approach to Management; she was a parent advisor for the development of videos portraying family experiences with decisions about home mechanical ventilation; and in November 2023, she took to the stage in New York City for a live storytelling event centered on the theme of "Taking Care" hosted by The Nocturnist and Bellevue Literary Review.
Ann has a Bachelor of Science from Arizona State University and a Juris Doctorate from University of Arizona. She is an estate planning and probate attorney. She is the founder of The Willow Tree Foundation, an Arizona non-profit organization that funds respite for parents of medically fragile children. Ann lives in Chandler, Arizona with her husband and their three adult children.
Ann’s writings:
www.jack-schrooten.blogspot.com
www.inchingonward.blogspot.com
Ann is the mother of four children. Her third child, Jack, was born with a rare congenital muscular dystrophy. Jack had a trach and required the support of a ventilator; he was non-verbal, non-mobile and required around the clock care. Jack died in 2014 at the age of 15 from complications of his disease. Ann has experienced hundreds of encounters with doctors and other medical professionals, beginning with Jack’s premature birth and complicated first year where he spent many months in the Pediatric Intensive Care Unit, through his diagnosis odyssey, the many procedures, surgeries and hospitalizations he endured, his transition to palliative care and, finally, to hospice care at the end of his life.
Ann co-authored the book, Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses with Dr. Barry Markovitz; she co-authored "Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death” in Neuromuscular Disorders in Children: A Multidisciplinary Approach to Management; she was a parent advisor for the development of videos portraying family experiences with decisions about home mechanical ventilation; and in November 2023, she took to the stage in New York City for a live storytelling event centered on the theme of "Taking Care" hosted by The Nocturnist and Bellevue Literary Review.
Ann has a Bachelor of Science from Arizona State University and a Juris Doctorate from University of Arizona. She is an estate planning and probate attorney. She is the founder of The Willow Tree Foundation, an Arizona non-profit organization that funds respite for parents of medically fragile children. Ann lives in Chandler, Arizona with her husband and their three adult children.
Ann’s writings:
www.jack-schrooten.blogspot.com
www.inchingonward.blogspot.com
Barry P. Markovitz MD MPH (Advisor)
Dr. Markovitz joined the University of Utah School of Medicine and Intermountain Primary Children’s Hospital as Professor of Pediatrics and Associate Division Chief for Research in the Division of Pediatric Critical Care Medicine on September 1, 2023.
In 2006, Dr. Markovitz joined Children’s Hospital Los Angeles to head the hospital’s Division of Critical Care Medicine and serve as Medical Director of the Pediatric Intensive Care Unit. He served as Chair of the Department of Anesthesiology Critical Care Medicine from 2018 to 2022. He was also a professor of Clinical Pediatrics and Anesthesiology at the Keck School of Medicine of USC. Dr. Markovitz is Board-certified in anesthesiology and pediatric anesthesiology, as well as pediatrics and pediatric critical care medicine. He has been involved in numerous research studies related to intensive care throughout his career, including transfusions, relationships between Pediatric ICU volume and outcomes, and the treatment of sepsis and acute respiratory distress syndrome.
Dr. Markovitz has served on the Executive Committee of the critical care section of the American Academy of Pediatrics. He has served on several editorial boards and was Chair of the Research Committee of VPS, LLC (Virtual Pediatric Systems), an international pediatric ICU quality and research collaborative. He also recently completed a term as Chair of the Scientific Committee of PALISI (Pediatric Acute Lung Injury and Sepsis Investigators), the largest pediatric critical care research network in North America. He developed and has maintained PedsCCM.org, the website for pediatric critical care, since 1995.
He earned his medical degree from the University of Pennsylvania Perelman School of Medicine and received a master’s in public health from St. Louis University. He did his pediatric internship and residency at Children’s Memorial Hospital (now the Ann & Robert H. Lurie Children’s Hospital of Chicago), Northwestern University Medical Center, and an anesthesiology residency at the Hospital of the University of Pennsylvania. Dr. Markovitz completed his fellowship in pediatric anesthesiology and critical care medicine at Children’s Hospital of Philadelphia.
He is a co-editor, with Ann Schrooten, of a collection of stories and commentaries by pediatricians and parents of children with medical complexity; Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses (Springer, 2021).
Dr. Markovitz joined the University of Utah School of Medicine and Intermountain Primary Children’s Hospital as Professor of Pediatrics and Associate Division Chief for Research in the Division of Pediatric Critical Care Medicine on September 1, 2023.
In 2006, Dr. Markovitz joined Children’s Hospital Los Angeles to head the hospital’s Division of Critical Care Medicine and serve as Medical Director of the Pediatric Intensive Care Unit. He served as Chair of the Department of Anesthesiology Critical Care Medicine from 2018 to 2022. He was also a professor of Clinical Pediatrics and Anesthesiology at the Keck School of Medicine of USC. Dr. Markovitz is Board-certified in anesthesiology and pediatric anesthesiology, as well as pediatrics and pediatric critical care medicine. He has been involved in numerous research studies related to intensive care throughout his career, including transfusions, relationships between Pediatric ICU volume and outcomes, and the treatment of sepsis and acute respiratory distress syndrome.
Dr. Markovitz has served on the Executive Committee of the critical care section of the American Academy of Pediatrics. He has served on several editorial boards and was Chair of the Research Committee of VPS, LLC (Virtual Pediatric Systems), an international pediatric ICU quality and research collaborative. He also recently completed a term as Chair of the Scientific Committee of PALISI (Pediatric Acute Lung Injury and Sepsis Investigators), the largest pediatric critical care research network in North America. He developed and has maintained PedsCCM.org, the website for pediatric critical care, since 1995.
He earned his medical degree from the University of Pennsylvania Perelman School of Medicine and received a master’s in public health from St. Louis University. He did his pediatric internship and residency at Children’s Memorial Hospital (now the Ann & Robert H. Lurie Children’s Hospital of Chicago), Northwestern University Medical Center, and an anesthesiology residency at the Hospital of the University of Pennsylvania. Dr. Markovitz completed his fellowship in pediatric anesthesiology and critical care medicine at Children’s Hospital of Philadelphia.
He is a co-editor, with Ann Schrooten, of a collection of stories and commentaries by pediatricians and parents of children with medical complexity; Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses (Springer, 2021).